No one left behind. A phrase so powerful that it became the slogan to mark inclusion as the core of Sustainable Development Goals (SDGs) agenda for the next 15 years. It symbolizes a world where we refuse to let some people slip away because their differences, including their disability. In Indonesia, that very principle actually underpins our constitution.
Article 28 H of UUD 1945 stated:
“Setiap orang berhak hidup sejahtera lahir dan batin, bertempat tinggal, dan mendapatkan lingkungan hidup yang baik dan sehat serta berhak memperoleh pelayanan kesehatan.
(Every person has the rights to live physically and spiritually prosperous, settled, have a good and healthy living environment, and have the rights to get health services).”
Unfortunately, translating principle into reality is never easy. People with disability are still excluded in many aspects of life and citizenship. Until recently, health sector was not an exception. In 2017, the Ministry of Health together with WHO initiated the development of a long term plan to make sure that health system and services leave no person with disability behind. To do that, the Ministry of Health and WHO joined forces with other stakeholders such as KOMPAK, CBM, and PUSKAPA to develop Roadmap on Inclusive Health Service 2017-2030. PUSKAPA had the honor to lead the formulation and the drafting.
PUSKAPA strived hard to honor the principle of no one left behind. We also understood that there’s no better way to do this than by involving them in the process, because as the disability movement slogan goes, “nothing about us is without us”. Our main goal was to develop a roadmap that reflects the health priority, needs, and aspiration of people with disability. We are aware of cases where people with disabilities were not involved in public decision-making, or when they do, it was done in a tokenistic manner. We wanted to show that not only it’s feasible to engage people with disability in formulating policy plan, it’s also the most effective way. We started by engaging 25 Disabled People Organization (DPOs) from different parts of Indonesia, representing different characteristic of disability, for a FGD. We wanted to know what their healthcare needs and to what extent the government has met these needs. Armed with information from DPOs, we then conducted a separate FGD with ministries and relevant government institutions, were followed with in-depth interviews and discussions after discussions. Several concepts were drafted and undergone validation and review process to ensure that we included every aspect, covered all information gaps, set realistic target, and devised effective strategies.
Finally, at the International Day of People with Disabilities event organized by Ministry of Health on December 6th 2017, Prof. Irwanto presented the final draft, which consists of 7 main strategies to achieve an inclusive health services. Currently the Ministry of Health is finalizing the roadmap and preparing for its regulation to provide legal basis for the roadmap.
The most notable part of this whole process is how we strived to listen to as many voices of people with disability as possible. It’s still far from perfect. However, through this process we have shown that full participation of people with disability to decide on what’s best for them is not only possible and imperative, but also the best way to formulate effective policy. Be it health services, social welfare, education, and other services. Because together, our task is to make sure no one left behind, in every step of the way.